If you’re forcing yourself to be optimistic about 2021 you’re not alone. I think we are all a bit shop worn from this year and ready to kick 2020 out the door. Good riddance! The true optimists will stay up until midnight to welcome the new year in. The pessimists will stay up to make sure the old year leaves. I think I’m a little bit of both. I just have to believe that 2021 will be kinder. Without Faith and hope I would feel stuck in this ongoing pandemic darkness. My gratitude for this vaccine and the scientists who worked so diligently to create it, is off the charts. I’m not going to make any ongoing new years resolutions, I know those don’t work for me. Instead I will try daily resolutions, much easier to control. One good thing about this new years eve is there will be no stress over what to wear, it’s either blue or pink pj’s. Maybe I’ll get a little wild and wear half of each. So I wish you all a Happy and Blessed New Year and good health in 2021. ❤️Ro
Twas days before Christmas
The tree was all lit
The presents were wrapped
By the tree they did sit.
The movies of romance
The letters to Santa
With lists, fill his sleigh
But up in the sky
In the dark quiet night
Shines the meaning
With it’s stunning
To remind us the birth
Of a Child that did come
To share with this world
Of God’s love from above.
Much greater a gift
Than under the tree
A gift that keeps giving
To you and to me.
The days seem to be moving fast and Christmas day will be here in a wink. Christmas is such an interesting Holiday. It’s the only Religious Holiday that’s also a Federal Holiday. Even though it is a celebration by Christians of the birth of Jesus Christ, atheists also participate with great enthusiasm. Go figure. This year online shopping is the new Mall. I must admit it took a lot of stress away for me. Last year just trying to find a parking place at the mall was such an annoyance. I would try to spot a shopper coming out of the mall heading to their car and start following them like the three wise men who followed the star until they found a parking space. This Christmas is when we buy this years gifts with next years money, hopefully. Oh for the good old days, when people stopped shopping when they ran out of money. I think Adults have made Christmas gifting in to something that began as a simple presentation of gifts for children around the Christmas tree to a woman unwrapping six shrimp forks from her dog who drew her name. It’s like a compulsory thunderstorm we all have to go through it together. And let’s talk about the foods of the Holiday. So many delicious calories to tempt us. People are worried about what they eat between Christmas and New Years when they should be more concerned about what they eat between New Years and next Christmas. Oh look, another Christmas TV special brought to us by cola, fast food and beer. Who would ever guessed that product consumption, TV entertainment and spirituality could mix so harmoniously? I think this year many won’t be saying they’re homesick and more like sick of home. It’s been said after December 25th, besides a circus, there’s nothing that packs up and tears out faster than the Christmas spirit. I’m going to try not to let that happen. We all need to be kinder and softer to those we love and to all humanity. It’s been a tough year but I see a bit of light at the end of the tunnel, just try to focus on that. Merry Christmas to all and a mighty good night. ❤️Ro
My sweet husband asked me what I want for Christmas this year. He likes to get a jump on it before his regular shopping day, December 24th. I told him I want him to sweep me up in his arms, carry me to our bed, throw me down and clean the house while I sleep. I was a bit dismayed by how relieved he looked. 😜😜😜 ❤️Ro
Actually I asked for new reading glasses. Wow, am I old or what.
Cog fog??? Is it Fall, Thanksgiving or Christmas? This photo taken in our neighborhood today Nov 24th. My brain can’t sort it out. Should I expect to see Easter decorations by January? I’m fragile, stop confusing me! ❤️Ro
Maybe 2020 will be their year. Nothing surprises me this year. ❤️Ro
California has gone from 3,200 covid cases a day just a few weeks ago to yesterdays report of November 17th to 11,525 a day. 😩🥺😡Ro
Bored with this pandemic.
Decided to wake up in Hawaii this morning.
The sun is shining, the sky is blue and I have some beautiful Hawaiian music playing from Amazon music app. Breakfast is waiting for me on my kitchen island of mango yogurt with pineapple chunks. Aloha, see you at the beach. ❤️Ro
OK, Candyland Halloween is over and now we are moving on to Thanksgiving. This will be the first thanksgiving with just the two of us in a very long time because of safe distancing. So many people I know dread Thanksgiving because of family turmoil and heated discussions (mostly political) that are often fueled by libations. Well now you have a pretty good excuse this year to not endure that. Normally Thanksgiving is an emotional time with people traveling thousands of miles just to be with people they only see once a year and then discover once a year is way too often. To be honest, I’m not crazy about turkey but the side dishes are the main attraction. I think mashed potatoes and gravy are the headliner for me. I came from a family where gravy is considered a beverage and there was always at least two gravy boats on the table per person. Archeologists 10,000 years from now will believe this was a sacred feast where gravy boats were worshipped. The one good thing that happens on that day, no matter how many family disagreements arise, is the menu. Turkey, sweet and mashed potatoes, gravy, dressing, cranberry sauce and pies all bring us together for 20 minutes of peace and glutenous harmony. It’s true that some people look forward to seeing the pies more than seeing their own relatives. Maybe that’s because the pies are sweeter? It’s a day when diets are tossed aside and we are thankful for elastic waistbands and roomy bathrobes. So enjoy this traditional day of thanks, no matter how many are at your table even if you like them or not. ❤️Ro
Oh my, here it comes AGAIN, another birthday. I think once you hit 60 birthdays should be celebrated every 10 years. In my opinion, and at age 75 I am entitled to one, the best thing about birthdays is the cake. Pie can’t compete with cake. Put candles in a cake and it becomes a Birthday cake. Put candles in a pie and somebody’s drunk in the kitchen. I like celebrating life with cake it’s a fun way to forget how old you are. At 75 I don’t shop at Victoria’s Secret anymore because the last time I bought sexy undies there, the clerk automatically gift wrapped them. That really bummed me out so I decided to treat myself to a spray tan and thought it would give me a ‘youthful’ glow. But when I got home that night I realized the person in the full length mirror looked more like a wrinkled yam. I got rid of that mirror. People give you strange things as gifts when you’re old. Last year I got a humidifier from one relative and a dehumidifier from another. Not sure what kind of message those were sending but I just put them both in the same room and figured they could fight it out. Mostly birthdays are a way to say, ‘Take that life, I made it another 12 months’. And…just a little tip, if you are my age, stay away from Antique Auctions. Last time I went they bid on me 3 times! ❤️Ro
I know it doesn’t officially arrive until December (tell that to the Denver people who were building snowmen this week) but I just want to say I hate winter, well at least winter in Michigan where I grew up in my early years. I never want to live anywhere again where it’s 7 degrees and that’s the high with the sun shining. I hated all that heavy constricting clothes you had to put on just to get the mail or take out the trash. The winter coats are so thick you have a bizarre walk with your arms sticking out from your sides like the Michelin Man. It’s a scary look on some people, like the old guy at the gas station who comes out to fill the tank. His heavy clothes, odd walk with arms starched out to his sides, grease stained earflap hat and icicle beard makes him look like he may have bodies in his basement. I know some will say, oh but a white Christmas is so nice. I say yes, but back there you also get a white Easter. I remember we had a picnic bench in our back yard. The time frame for using that was about 4 days a year in what they call summer back there which is June 25th to July 30th. Forget Spring, it’s even shorter. About the only thing the picnic table was good for was in the winter you could look out the window and tell how high the snow was. People who haven’t lived in the cold climate haven’t had the daily joy of shoveling snow. It’s an endless job because just when you think you’re done, the snow plow comes by again and dumps a 3 foot potential frozen speed bump at the end of your driveway. So here I am in sunny California and not really hating winter, just hating having to turn the clock back an hour this weekend. Oh don’t get me started on that, I hate it when it’s dark at 5:30 pm. ❤️ Ro
For those who purchased the ‘New Snuggie’ blanket shown here in a prior post, this new item is now also available at Ro-Mart online for the winter cold ❤️Ro
No one knows how this election will turn out next week but unless YOU VOTE to express your American Choice voting privilege you are not allowed to complain about the results if they don’t aline with what you want. Just DO IT! ❤️Ro
I think the difference between the two words ‘up’ and ‘down’ seems to be an age related thing. Kids love using the ‘up’ word. They tag it on to everything like, hey, wait-up, no, you shut-up, please, let me stay-up, hold-up or I don’t want to get-up and Mom, why do I have to clean-up. Their whole life is in the ‘up’ mode. Then when they become adults and parents, the active word changes to ‘down’. Like hey, slow-down, get-down from there, put that-down, would you keep-it-down and the never ending, just sit-down. Two little words with a big generation gap. I imagine they are being used up a lot during this down Pandemic. ❤️Ro
Clock just struck 12am and my recliner turned into a pumpkin. Heading off to bed now and will face tomorrow, whatever it may bring. I already have my Prince Charming. Good night. ❤️Ro
The strangest things happen in the 2020 Twilight Zone. ❤️Ro
Thank you for holding this broken body together today.
I needed you and you were there for me.
Thank you for every bit of love, mercy and grace that was shown to me.
Thank you for your faithfulness in comforting me on this difficult MS journey.
With You as my guide, I know I can make it through to another day.
May Your Peace be with me as I rest tonight.
Everybody talks about the weather but nobody ever does anything about it. It’s sort of like the weather report for Congress: ‘Two to three feet of Drama with Bullsh!t blowing in from all sides’. I’m wondering why do we need a weather report 3-5 times a day on the newscast? Have we just decided it’s the way it always has been even though they are probably not really needed? There is a weather app on my phone that will give me an accurate 5 day forecast for up to 12 Cities or Countries and there’s an instant current temperature read on my TV screen 24/7 whenever I push the program info key. My atomic scan clock gives me continuous weather info for both inside and outside my house along with moon fullness and humidity readings. There’s also a weather app on my TV remote control which gives me a 10 day forecast on temperature, humidity, rain, snow, wind and cholesterol reading. There’s even an outside/inside temperature reading on my car dashboard. So why are we so obsessed with weather reports? I could understand the need if you lived in Crazy weather Zone, Denver Colorado, where the morning could be 70 degrees and by the time you left the grocery store, school or your office it could be snowing or vise versa. Those people never know what to expect and that would drive me crazy. On the other hand if you lived in Hawaii, they would only need to give a 3 minute weather report, once a week on Monday morning. There’s a pretty good chance the variance would not exceed 2 percent. I think the only thing we really need, to tell the weather, is a primitive devise called a ‘Weather Stone’ which is a simply 4 inch rock tied to a 15 inch heavy string and hung from a tree. Cavemen used it before Cable TV weather reports. It will give you an accurate weather forecast as follows:
Stone is wet. Rain
Stone is dry. No Rain
Ground shadow. Sunny
White on top. Snowing
Can’t see stone. Foggy
Stone swings. Windy
Stone gone. Tornado
Sometimes I wish I was the ‘weather’. You would bring me up in conversations forever and when it rained, I’d be the talk of the day. ❤️ Ro
Being locked inside with family for 7+ months can be a test of patience and control but when home machines like Alexa start giving you grief you feel like you’ve entered a whole other level of the Twilight Zone. When you ask Alexa to play your favorite song and she says “No, I don’t like that song anymore!” or if you ask her for the score of the 49ers and she says “Who the hell cares, I’m watching the Dodgers game!” You know that Twilight Zone has arrived. I heard her talking to herself the other day, or so I thought. Turns out she’s having a secret affair with Siri. Since the warranty has expired I guess I’ll have to live with it. Just another ‘normal’ day in 2020. ❤️Ro
For my MS friends who have asked for a copy of this article on MS Fatigue to share with family and friends, here it is:
PAYING the MS TAX:
It’s time for me to talk about a pretty common occurrence in my life, those times when I have to “pay the MS Tax”. That’s what I call it anyway. I’m referring to that period of time after I’ve tried to act normal, when I’ve put on my best smile (real or not), bit the bullet, and went out and actually did some sort of activity like most people do. That time when I feel like I’m paying for acting like everyone else. For me, the day after an activity is typically filled with fatigue, pain, and even confusion that necessitates me doing next to nothing. While my experiences certainly don’t reflect everyone with MS (or other chronic illnesses for that matter), I know there are many that do deal with this phenomenon.
Having to have a recovery day (or even days) has become such a necessity to me, that my wife and I have to plan for it. As you can probably surmise, if there are two things happening back to back, that means picking and choosing one over the other. Most times that’ll be whatever comes first because I will always tell myself “oh I can do it all”. I tell myself that and then the day after the first event, reality comes crashing down, I’m stuck in bed or on the couch and looking terrible because once again I’ve had to cancel at the last minute.
Even though logically I know I am going to need down time, I still tend to get this attitude that I can do everything. My wife knows better and will try to talk some sense into me but at the same time, I imagine it’s pretty hard to do that. MS and other chronic illnesses can be such roller coasters. You get lots of crappy lows but when you do feel good, it’s so rare that you want to take on the world and do everything possible. That leads to overdoing it which leads to an even longer recovery time. The process then keeps repeating itself.
So what happens when it’s time for me to pay the MS Tax? As I’ve mentioned, it’s a lot of laying down, either in bed or on the couch. For me, it’s primarily that because my legs will be weak, any attempt at standing and walking is tough. Just making it to the bathroom becomes an adventure! I would happily try to sleep the day away because I am overwhelmingly fatigued. The simplest of tasks, even trying to change the channel on the TV with a remote feels like I’m trying to swim through quicksand. So sleep should be a no brainer here, except that sleep becomes difficult too. That’s because, like many others with MS, I suffer from some extreme pain. For me, a lot of my pain gets focused in my legs and arms. It’s often a searing, burning sensation that feels like my body is on fire from the inside out. This kind of pain makes trying to relax and sleep quite difficult, no matter how tired or fatigued you are.
While I’m home paying the MS Tax, it’s easy to feel that I’m missing out on life. The advent of social media makes that even worse because I can see the fun times being had by all. I’m at the point in my long tenure with multiple sclerosis that I realize that this is a part of my life. I make the best of the times when I am out and try not to feel like I am missing out on others. I try to look at it as though I’m not missing out, I’m just preparing for the next time. The problem I do have is feeling bad for my wife that I can’t always be there with her. As hard as it is for her, we’ve come to an agreement that I still want her to get out there and do all that she can no matter what my condition. In a way, I feel like she is out there representing me while my body is at home recovering. At times I do feel the tug of loneliness, but I do feel some solace that at least one of us is getting out there. I’d feel ten times worse knowing that my illness prevented her from enjoying life.
Like regular taxes, paying the MS Tax is now an unpleasant but unavoidable part of my life. Acknowledging it and having the right attitude about it is so very important to avoid getting depressed about it. As I said, I like to think of it as just getting ready for the next time.
People are so crazy when it comes to food preferences. Like my friend who always wants me to ‘taste this’. I don’t want to taste her food order. If I wanted what she’s eating, I would have ordered that. She’s a dear friend who has been on an unending quest to convince me her vegetarian lifestyle could get me to give up ‘In and Out’ Burgers. Ha. Last time we met for lunch (pre-Covid) she said “Here, taste this, it tastes just like Turkey but it’s made with Tofu.” I said, I don’t want to taste it because I already found something that tastes like turkey, it’s made with turkey and it is turkey. You would think after all these years she would just give up. I like to throw her contemplative questions about her food choices like, Can vegetarians still eat Animal Crackers? And, if two vegetarians get in to an argument can you still call it a ‘beef’?
I think it would be cool if you could eat good food with bad food and the good food would cover for the bad food when it got to your stomach. Like you could eat a carrot with an onion ring and they would travel down to your stomach, then they would get there, and the carrot would say, “It’s cool, he’s with me.” Now that makes sense to me, buddy food and then everyone is happy. ❤️Ro
I’ll miss the ghosts and goblins that knock upon my door.
But something much more frightening, has made me say no more.
There is an unseen evil that lurks within the night
And to me it’s much more scary and gives me quite a fright.
A virus they do call it, it whispers through the air
And if you do not wear a mask
You’re in for quite a scare
So when the moon comes full, on this the Hallo night
Just lock your doors and hunker down
Stay safe and out of sight!
Well it’s getting closer, Election Day. One reason I’ll be thankful for it to be over, beside the pathetic bickering debates, will be the end to political TV ads, mailbox ads and the political phone calls which Congress protected from the ‘Do Not Call’ option. Oh, Congress and Bipartisan, which just means…too many Republicans and too many Democrats and not enough US Congressmen. It’s scary to think what could be accomplished if they would all work together for the good of the US Citizens. Too many BIG power Egos all around. By the time a person gets to be at the level of a US politician they have been bought$$$ ten times over and often their focus is on the next election instead of the next generation. Sometimes I think if voting made any difference, they wouldn’t let us do it. Anyway, this 2020 election fits right in with all the other craziness of this year. Now go Vote 🇱🇷, maybe it will be counted. 📪 ❤️Ro
The only safe and approved Halloween trick or treat costume this year. Ro😦
Available on Amazon, or you can just buy a couple bags of candy and give them to your own kids. Cheaper and Safer!🥴
With all the turmoil in the market today many large companies are looking for mergers to keep afloat. If you can buy stock when it happens you can make some good profits.
Watch for these consolidations later on this year:
Progressive and Allstate will merge and become Prostate Insurance.
YouTube, Facebook and Twitter will merge and become YouFaceTwitt.
Stop and Shop will merge with A&P grocery to become Stop&P
Hale Business Systems, Mary Kay Cosmetics, Fuller Brush, and W R. Grace Co. will merge and become Hale, Mary, Fuller, Grace
Polygram Records, Warner Bros., and Ritz Crackers join forces and become: Poly, Warner Cracker
3M will merge with Goodyear and become: MMMGood.
FedEx is expected to join its competitor, UPS, and become: FedUP.
Grey Poupon and Docker Pants are expected to become: PouponPants.
Knotts Berry Farm and the National Organization of Women will become: Knott NOW.
Still under consideration: Taco Bell and Weinerschnitzel to become BeanerSchnitzel.
Only in America!😂😁😎🙀
While watching the SF Giants game today, I was just thinking if an alien spaceship landed on the field in the middle of the night and saw all those thousands of cardboard cutouts of people in the stands….how weird would that be? Actually maybe not so weird for 2020. ❤️😱Ro
14,000 cutouts in the stadium ballpark
After studying my husband for the last seven months of stay home confinement, I can say with certainty that women are more complicated creatures. Our brains are just wired differently. I’m pretty sure I could get a grant to study why men leave drawers and cupboards open or even more interesting, leaving drawers open just 1 inch from fully closing. This has been an ongoing study in our house for the last 40 years and still no logical answer, so It has to be something to do with brain wiring. I think men are rather simple creatures. Their list of needs is short and uncomplicated, whereas a woman’s list can be several pages. If a problem situation should arise for a woman, a man is eager to offer his advise on how to ‘fix’ it. Women don’t want that advise at that critical moment. They just want a few minutes of compassionate understanding. Most women already know how to fix the problem. It’s amazing to me how men and women learn to be compatible and live together in peace and hormonal harmony. I guess it’s just called love. ❤️Ro
Man’s simple wiring
Grocery store employees are unsung heroes on the front lines of the coronavirus pandemic. Not only do they risk infection to keep our families fed and our pantries full of Cheese-its, they offer one of the last remaining opportunities to interact live with another human being. For those who must shelter alone, it may be the only human ‘one on one’ conversation they have all week. These workers are forced to deal with unending complaints from anxious customers about out-of-stock items, required masks, special “senior shopping hours” and one way isle markers which are seen by some as an inconvenience. People take grocery store workers for granted, I couldn’t agree more. Take time to say thanks for their service next time you shop. Not all heroes wear hospital masks — some wear aprons instead. ❤️Ro
So many things have changed since this social distancing has become a part of our everyday life. Drive throughs are the new way of living on the safe side. The grocery stores will shop for you and you just drive up and they bring it out and put it in your car. Pizza places are also on board, just call it in, drive up and they put it in your car, no need to turn off your engine. You can get your prescriptions at a drive up window at many drug stores and some churches are doing parking lot,in your car, sermons. In Las Vegas you can even get married at a drive through wedding chapel like ‘Viva Las Vegas’ although I think it should be mandatory for you to take a DUI breath analyzer test for that. Kaiser Permanente will be doing flu shots next month via drive through inoculations. I think that’s a good idea, however, I am concerned about the rumor they may start drive through mammograms soon and I am definitely opposed to that one! ❤️Ro
Weddings starting at $199. Optional Prepaid Divorce Package starting at $5,000.
Some days it takes a lot of work just to be OK. After 7 months spending 24/7 with your loved one it’s not always easy to be pleasant and cheerful. It takes effort to overcome this tedious confinement. I have my crabby days and when I do I can’t blame it on MS, it’s because I’m not making the effort. Pity party for one maybe? Thankfully we both give each other space when that happens. Love isn’t a state of perfection, it’s accepting the other person for the way they are right here and now, my husband knows how to do that. After 40 years of not just loving my husband but being ‘in love’ with him, I know our love is strong and we adjust to temporary moods. We understand it takes patience and knowing when to speak when words are needed and to share the silence when they are not. It’s strange having so many hours together every day for months on end but there is no one I would rather be with and I am thankful our love is tender and eternal and we still love each other on crabby days. ❤️Ro
September 11, 2001 was a horrific day for America when thousands of innocent men, women and little children were brutally murdered by the islamic terrorist group. It may have been the last time our Nation was united. Everyone had their American flag flying as we stood together in shock and disgust at this senseless crime against humanity. Please fly your American flag this week in remembrance of the 3,000 Americans who died that day. We’re still the Greatest Country in the world!🇱🇷🇱🇷🇱🇷🇱🇷🇱🇷🇱🇷🇱🇷🇱🇷Ro
Take care in this heat wave. Stay hydrated. ❤️Ro
The English language is a mystery to most of us. I once took a crash course in German for a trip to Austria and I remember the teacher saying most people don’t know that it’s the English language that is one of the most difficult to learn. From our bizarre spelling rules to our free for all grammar and the regional accents sometimes makes it hard to believe we all live in the same USA. The placement of a word in a simple sentence can change the meaning entirely. Example: Place the word ‘Only’ anywhere in this sentence and see how that affects it ‘She told him that she loved him’. Yes, English can be weird but it can be understood through tough thorough thought, though. Word pronunciation is always a challenge too. Logically speaking you would assume if womb is pronounced woom and tomb is pronounced toom then shouldn’t bomb be pronounced boom? It’s also easy to misinterpret the spoken English language. This sentence has 7 different meanings depending which word is emphasized:
‘I never said she stole my money’.
So let’s not be too hard on people from other countries who move here and don’t master our English language. As you can see, it’s no easy lesson and I think we’re all still learning. I is. ❤️Ro
Misunderstanding the English language.
Fast Food. I wonder if that’s mostly an American thing. And when did the drive through window service first start? I don’t remember that when I was a kid, car hop service was the closest thing back then. At some point after the TV remote was invented did some CEO think, Americans are so damn lazy let’s just tell them they can just drive around back and we can give them their food through a special window with no guilt? No need to bother walking the 40 steps from their car. They even have drive by trash cans for the greasy french fry paper and milk shake cup evidence. Everything is anonymous. One thing I don’t like about drive throughs are those miniature ketchup packets they give you. I’m not a fussy person but by the time I finally get the packet open, it’s enough for 1 fry. If you ask for extra ketchup they likely will hand you 20 packets and by the time you get them all open, if you haven’t chipped your tooth, the fries are cold. I love french fries and especially McDonald’s fries. They have just the right amount of hot grease and salt. I feel delightfully satisfied when I eat a bag of them and surprisingly sad when they’re all gone. Sometimes there’s a little surprise and you will find an unexpected missed ‘bonus fry’ hiding in the bottom corner of the bag. It’s like finding a five dollar bill in the pocket of a coat you haven’t worn in two years. Just a tiny momentary joy that makes your day! ❤️Ro
With my MS I really try to rationalize the food I eat and make good choices but there are some foods there are no reason to ever eat, like a Cinnabon. Have you ever eaten one, you have to take a nap half way through, it’s kind of a magical vacation experience. And the smell of them baking is like Satan calling out to you…come this way…you need this. Oh, they call it a bun but it’s the size of a bean bag chair. You could actually sit in it and eat it at the same time, but be sure you have pants on, they’re sticky. Standing in line for a Cinnabon is an experience in itself. No one makes eye contact, we’re all feeling a little shame. The face masks help on anonymity. I always say I’m just there for the napkins. If you’re at the airport and you need an excuse to buy one, you can sort of rationalize you’re sick of airplane food and would rather have an 8 pound sugar bun instead. Warning, the people sitting next to you will give you the snake eye and start drooling. My only real complaint about Cinnabon is they don’t deliver. I think the American Diabetes Foundation convinced Congress to outlaw that. It’s a pity. ❤️Ro
MS fatigue is very different from the feeling of being tired or exhausted that people without MS may experience following heavy exercise or a busy day at work. Fatigue involves a sudden loss of energy and not being able to continue an activity. It can be either physical or mental fatigue or both at the same time. Oh NO! For me fatigue feels as if I’m an inflatable and someone has pulled out the air-stopper. My brain gets fuzzy, my balance gets worse and my legs feel heavy and clumsy. It’s one of those cruel MS symptoms because there is no warning signal before it hits and can happen when you’re in the middle of trying to do something or getting ready to go out. It can feel like a barrier to trying to live a normal life with MS.
Unlike the limits of plain everyday tiredness, which may give a little when pushed against, MS fatigue can be difficult to recognise what your limits are until you’ve overstepped them. Understandably friends and family can find it hard to understand how your energy can go from 60 to zero so fast. We MSers don’t even understand how that can happen, it’s odd and unsettling. It’s an invisible symptom that can rock your world when it hits. Fortunately it’s not an every day experience and we learn how to deal with it until it passes. It can take love and kindness for friends and family to finally ‘get’ how debilitating it can be and how very frustrating it is to both us and them. So be patient, MS is an ongoing learning experience that takes time and compassion to understand and accept for everyone. ❤️ Ro
I need to take some time off to recharge my batteries.
I have friends. In Australia, Canada and England who ask me about all this crazy out of control rioting and looting protests that have been going on for months that they see on their news. Seems our country is getting quite the reputation. Received this photo today from a friend. ❤️🇱🇷Ro
School days, school days, good old golden rule days. Ha, I wonder how many kids even know what that term means. Needless to say the new educational circumstances have become a source of family chaos. I can understand the parents mixed emotions of letting their brood return to the classroom or keep home schoołing them. Parents are exhausted and kids are bored. When I volunteered with the Big Sisters program my 8 yr old little sister and I met at her school for lunch. There were 31 students in her class room that should have had only 15 desks. How can it be possible to safe distance teach under those circumstances? Impossible! The school districts better start lining up substitute teachers to replace all of the ones who will be on 14 day quarantine. What a mess. I’ve heard some parents say they are finished with home schooling, between their kids trying to call in sick and showing up late to school, they are only teaching ‘anger management’ now, which may not be such a bad thing. So glad our kids are grown and they are the ones doing the homeschooling. ❤️ Ro
The homeschool lunch menu changes as the weeks move on:
106-108-108-106. No that is not my NETFLIX password, it’s the daily California temperatures for the next 4 days. It happens every August so no surprise. Then we just hope there are no power failures so the air conditioner keeps working. Heat and MS are mortal enemies and can cause all kinds of miserable flare ups. So I’m staying low and slow today, whatever that means, I just liked that it rhymes. It’s so hot today, I saw a dog chasing a squirrel and they were both walking, I take that warning seriously. So until the heat index drops below OMG and WTF, I will remain indoors in front of the fan with a pitcher of lemonade and my remote. Hope you will do the same. ❤️Ro
Just another day in paradise. 😎
I think a lot of us have grown tired of our ‘Home Restaurant’. I’ve been pretty creative on meals with lots of fresh vegetables but I’m ready to have those veggies served in carrot cake, zucchini bread and pumpkin pie. My husband and I look at each other at about 5:30 pm and ask “What are we putting together for dinner?” Admittedly it’s a lack of motivation from both of us. We are moving about in a fog cloud these days which I use to blame on MS. I think I’ve made every type of soup there is. We both cook but he is often the main chef depending on what creative ingredients are on hand, it’s getting to be a challenge. We’ve put pizza on the back burner for awhile. The last time I ordered one they asked me if I wanted it cut in 4 or 8 pieces. I said 4 because I couldn’t eat 8. Duh I’m craving comfort food now and the diet food is not on the menu this week. The only time I’ll be eating diet food is while I’m waiting for the steak to cook. 😱. ❤️Ro
Creative cooking, using the old noggin.
I find it Interesting that since this covid isolation began, RV sales have increased 100 percent and camping gear is flying off the shelves. What could be better than a day filled with exploring the great woods while donating blood, one mosquito at a time, in a tent? Camping appeals to those who want to get closer to nature while getting farther away from the nearest cold drink, hot shower, comfy bed and flush toilet. To me that sounds more like a homeless camp. Personally I think camping is natures way of promoting the Hotel business. Some National Parks now have long waiting lists for camping reservations. If you have to wait a year to sleep next to a tree, something’s wrong. I think camping is the only vacation where you work harder preparing meals and taking care of your own living space than you do in your own house. Overall I prefer the adventures and luxuries of a nice hotel with indoor plumbing and a hot shower and Daniel Boone and friends can have the S’mores and great outdoors experience. ❤️Ro
Hope to see you at the campfire soon.
Cell phones are both a convenience and a curse. We jump to answer every ding or dong it screams at us. People expect an immediate reply or they feel slighted. Too much pressure. I hate it when people text “Call me”. I’m going to start calling them and when they answer I’ll say “Text me”, then hang up. The only thing I can compare a cell phone to would be a women because we love to be held and talked to, but if you push the wrong button you are sure to be disconnected, especially if you try to push the ‘mute’ button. My mind is getting so foggy from isolation I was searching the sofa cushions for my cell phone and then realized I was using the flashlight on my phone. If it was really a smart phone you should just be able to call out…”where are you?” and it would say something like “In your hand” or “second cushion on the right”. If a woman designed it, it would have that feature for sure. The saddest part about cell phones is even though they can bring you closer to the people far away from you, they can also take you away from the person sitting next to you. Take care on that one. ❤️Ro
To all the wonderful, much needed and most appreciated medical community Heroes , thank you! Many of us know some of these wonderful, compassionate people who are at the front line giving care and treatment to those fighting to survive from this deadly virus while putting themselves at a very high risk. How can I ever complain about being isolated and protected when they get up every morning and look death in the face. Yes there are days my MS fatigue is hard to cope with, but I can’t imagine what their physical and emotional fatigue must be like watching this raging virus take life after life while they continue on trying to save the next one. Their post traumatic syndrome will be with them for years. They are in my prayers for their health, protection and strength. Please put them in your prayers too. ❤️Ro
152,320 Covid deaths since February